The National Kidney Foundation is developing an online registry for patients with chronic kidney disease to help them access educational resources and research.
The NKF Patient Network will use patients-entered clinical and lab data obtained from EHRs to provide individualized education and support to the patient's stage of diseases and related health conditions.
Patient data stored in the registry will include demographics, medical history, kidney disease stage and information on related conditions, such as heart disease and hypertension.
Healthcare software company Pulse InfoFrame will develop the online platform over the next year. The NKF Patient Network is expected to launch globally in 2021.