The Childhood Arthritis and Rheumatology Research Alliance has selected Medidata to support its data collection project.
CARRA, founded by pediatric rheumatologists to research clinical questions, is launching a 10-year project to collect comprehensive data on pediatric rheumatic diseases and treatments and compile it into a registry. Medidata will capture and manage the data and provide a mobile patient-direct data capture platform, according to a news release.
The mobile app will provide questionnaires and diaries for patients that will allow researchers to collect ambulatory data as well. Data will be collected from individuals in both the U.S. and Canada.
"This is a critical next step in understanding how to best apply available therapies and improve the systems for studying the safety and efficacy of treatment options for childhood-onset arthritis," said Marc Natter, MD, the CARRA Registry's director of informatics development and instructor in the Boston Children's Hospital Informatics Program, in the news release.